“Two things broke down the silos for dramatic advancement in AIDS research leading to rapid therapy development. The first was the collective intent of the patient community that came with a shared sense of urgency. The second was that the patient community once excluded from collaboration now was the catalyst for new drug discovery and [...]Read More »
Welcome to the Research1st blog! We’ll be using this page to keep you updated on the latest news and information about CFS-related research. You’re welcome to submit comments subject to compliance with our blog guidelines.
In 2011, The CFIDS Association brought together a group of leaders in the field of ME/CFS to help direct our research efforts. Recently we invited additional members to our Research Advisory Council; people with expertise in regulatory, intellectual property, legal and privacy issues. Since this required people in addition to scientists, we changed the designation from [...]Read More »
In the fall of 2012, the U.S. Centers for Disease Control and Prevention (CDC) began a new series of conference calls to update stakeholders about ME/CFS-related research activities and other topics of interest. Information on the next call, scheduled for September 10, 2013, is provided below from their listserv and website. To sign up for this call or to [...]Read More »
Submitted by Guest Blogger, Carollynn Bartosh Five years ago when my mom went on hospice for COPD, she wanted to do whatever she could to help the ME/CFS cause for my sake. She was nostalgic for the years before I got sick when I was a busy professional, traveling for work and [...]Read More »
I attended my first CFS Advisory Committee (CFSAC) meeting on May 22nd & 23rd in Washington DC. I was there as the newest staff representative of the CFIDS Association of America, sitting in as a member of the public vs. an official seat at the table. While I have worked for non-profit advocacy groups – [...]Read More »