Research1st Blog

By K. Kimberly McCleary, President & CEO For weeks we have used construction metaphors to describe the preparations for today’s announcements. With those preparations behind us, we can finally share the news about the latest set of additions to our research program. So, what have we constructed? We’re calling it a research institute without walls. No [...]

By Kyle KenneyScience Communications Intern Many of you may remember the now-retired CFIDS Chronicle, the Association’s first publication which began in 1987 as a way of keeping members of the CEBV Support Group in Charlotte, North Carolina, up-to-date on research and group activities. As the Association expanded in the 1990s and 2000s, the Chronicle did [...]

By K. Kimberly McClearyPresident & CEO, The CFIDS Association of America In October 2009 CFS was linked to xenotropic murine leukemia virus-related virus, or XMRV, in a paper published by Lombardi et al in Science. A second study published in the Proceedings of the National Academy of Sciences (PNAS) in August 2010 broadened the search, [...]

On May 9, 2012, we hosted a special webinar, “A Conversation with Roger King and Wilhelmina Jenkins.” It was well-attended and received high marks from participants. The recording is now available at: http://bit.ly/may9-webinar-rec. Novelist and filmmaker Roger King has written a new autobiographical novel, Love and Fatigue in America, about his journey in the U.S. [...]

From the CEO’s DeskMay 2012 The grants we awarded to form the Research Institute Without Walls were rigorously vetted for scientific and strategic merit. About the only thing we didn’t include as part of the review process was a movie screen test. So when I announced during the first session of our kick-off meeting that we’d [...]

By Leonard A. Jason, Ph.D. and Meredyth EvansDePaul University The criteria for defining cases is an important topic in research and medicine. For chronic fatigue syndrome, it has been a vexing topic whether one considers CFS to be a new condition identified with the 1988 case definition (Holmes, et al.) or a new (if unwanted) name [...]