The federal Chronic Fatigue Syndrome Advisory Committee (CFSAC) meets next on May 22-23, 2013 in Washington, D.C. This chartered advisory committee provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to ME/CFS. Here is the Federal Register notice announcing the meeting: http://1.usa.gov/15g9vA5 [...]

The fourth webinar in our spring series focuses on how the CFIDS Association is fostering the development of safe and effective therapies for ME/CFS. Please join us!Date/Time (Live Event): Wednesday, April 17, 2013 at 1 p.m. EDT Speakers: Suzanne Vernon, Ph.D. (Scientific Director) and Mark Stone (Director of Development), The CFIDS Association of AmericaRecording: http://bit.ly/apr-17-webinar Dr. [...]

The upcoming FDA Workshop on Drug Development is a historic opportunity for the ME/CFS* community to establish ME/CFS as a priority for drug development. Learn more about the FDA workshop here: http://bit.ly/fda-mtg-agenda To inform, educate and engage with the community so that our individual contributions have amplified impact, we are hosting a six-program spring webinar series and [...]

The U.S. Food and Drug Administration (FDA) will host a workshop on drug development and CFS and ME on April 25-26, 2013. This FDA workshop will also serve as the first of 20 disease-specific meetings where the FDA will gather patients’ perspectives as part of a mandated “Patient-Focused Drug Development Initiative.” The CFIDS Association of [...]

This notice was posted to the FDA’s website and circulated to the Department of Health and Human Services CFS Advisory Committee’s public listserv. Inquiries should be directed to FDA at ME-CFS-Meeting@fda.hhs.gov. FDA Workshop on Drug Development for Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME) – Update The public workshop will be held on the [...]

In the fall of 2012, the U.S. Centers for Disease Control and Prevention (CDC) began a new series of conference calls to update stakeholders about CFS-related research activities and other topics of interest. Information on the next call, scheduled for Jan. 14, 2013, is provided below from their listserv and website. To sign up for [...]

The CFIDS Association has sharpened its focus and is transforming the way that CFS research is done. With deep roots and new growth, we are determined to change the future for people living with CFS. Here are 10 reasons to consider the CFIDS Association as you make your final year-end charitable gifts: #10: Our top strategic priority is [...]

The Food and Drug Administration’s Arthritis Advisory Committee will review data on Ampligen submitted by manufacturer Hemipsherx Biopharma and an internal FDA team. The December 20, 2012 meeting is the first-ever FDA advisory committee meeting to review a drug for possible approval to treat CFS. Extensive background materials were posted to the FDA’s website on [...]

To inspire donations to the CFIDS Association during this year-end giving season, two long-time supporters (who prefer to remain anonymous) have issued a 24-hour opportunity to double your gift! They will match donations made online before noon on Wed., Dec. 19 up to $2,500. At the heart of this challenge is the vision that has fueled [...]

On Nov. 19, 2012, the CFIDS Association will be part of two teams competing in the finals of Sanofi’s Partners in Patient Health Collaborate | Activate Innovation Challenge in Washington, D.C. (The event was rescheduled from Oct. 29 due to Hurricane Sandy.) With a few extra weeks to prepare, the excitement has continued to build, and we hope [...]