Post-exertion relapse (also known as post-exertional malaise or PEM) is one of the hallmarks of CFS. It's also a vexing feature for patients, physicians and researchers to grapple with day-to-day, in the clinic and in research studies on CFS.
During a webinar held July 19, 2012, researchers from the Pacific Fatigue Lab at the University of the Pacific shared their insights into the characteristics of PEM and addressed the 10 most-asked questions about it based on hundreds of questions submitted in advance. They addressed additional questions during and after their planned presentation.
This is the team that first documented the serious abnormal response to exercise testing through the test-retest protocol conducted over two days. Their research has been funded by the CFIDS Association of America.
This webinar attracted 813 registrants, underscoring the interest in this topic.
Kim McCleary, CEO of the CFIDS Association of America
Webinar recording: http://bit.ly/PEM-webinar-2 (SolveCFS Channel on YouTube)
(Please note: there were some technical problems with the audio quality that improve as the presentation continues. We've been able to improve upon the quality a bit and posted a new recording on July 25.)
Webinar slides: Click here
We have collected a variety of resources about PEM from past publications and webinars here: http://bit.ly/pem-resources
Materials from the Pacfic Fatigue Lab:
- PFL Testing for Post-Exertional Malaise & Disability
By Staci Stevens and Christopher J. Snell, Ph.D. |
Originally published Nov. 18, 2011 on Research1st.com
The Pacific Fatigue Lab has become the premier center for test-retest exercise testing to document PEM.
- When Working Out Doesn't Work Out
By Christopher J. Snell, Ph.D., Mark Van Ness, Ph.D., and Staci Stevens
Originally published summer 2004 in the CFIDS Chronicle
This article examines exercise and ways people with CFS can balance activity and deconditioning.
Research publications from the Pacific Fatigue Lab group:
- VanNess J, Snell C, & Stevens S. (2007) Diminished Cardiopulmonary Capacity During Post-Exertional
Malaise. Journal of Chronic Fatigue Syndrome, 14(2): 77-85. (Journal is defunct.)
- VanNess J, Stevens S, Bateman L, et al. (2010) Postexertional Malaise in Women with Chronic Fatigue
Syndrome. Journal of Women’s Health, 19(2): 239-244. Abstract: http://bit.ly/MxjkgM
- Davenport TE, Stevens SR, VanNess JM, et al. (2010) Conceptual Model for Physical Therapist Management of
Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. Physical Therapy, 90(4): xxx-xxx.
- Davenport TE, Stevens SR, Baroni K, Van Ness JM, Snell CR. (2011) Diagnostic accuracy of symptoms characterising CFS. Disability and Rehabilitation, 2011;33(19-20):1768-75. Epub 2011 Jan 6. Abstract: http://bit.ly/O2z4WT
- Davenport TE, Stevens SR, Baroni K, Van Ness JM, Snell CR. (2011) Reliability and validity of Short Form 36 Version 2 to measure health perceptions in a sub-group of individuals with fatigue. Disability and Rehabilitation, 2011;33(25-26):2596-604. Epub 2011 Jun 20. Abstract: http://bit.ly/NHdk4b
Pacfic Fatigue Lab website: http://bit.ly/LNGxec
Jennifer M. Spotila, J.D., has researched the topic of post-exertional relapse extensively and she has written about it for the Association and on her blog, Occupy CFS. Links to some of her resources:
- Unraveling Post-Exertional Malaise: A four-part series on PEM written for the Association's monthly e-newsetter (2010). Link: http://bit.ly/PEM-4-parts
- The “E” Word: As a follow-up to her four-part series (above), Jennie looks at ways that people with CFS can be active without triggering PEM. Link: http://www.cfids.org/cfidslink/2010/100604.asp
- Exercise Testing and Results: A series of posts about Jennie's own experience preparing for, undergoing, recovering from and using cardiopulmonary exercise testing to manage her PEM. http://www.occupycfs.com/exercise-testing-and-results/#comment-2032
Cognition & CFS: CFIDS Association resources collected at http://bit.ly/cognition-resources
Orthostatic Intolerance & CFS: CFIDS Association resources collected at http://bit.ly/oi-outs-ins
Joint Hypermobility: Article by Dr. Alan Pocinki at http://bit.ly/vIUKPp
ANS Dysfunction Junction: Article by Dr. Pocinki at http://bit.ly/xRrzHr
CFIDS & FM Self-Help Resources
This website, established by Dr. Bruce J. Campbell, provides helpful resources for pacing and energy conservation. Link: http://www.cfidsselfhelp.org/
Consumer Search tips on how to purchase a heart rate monitor: http://csear.ch/NHdKHN