SageCon & Open Access Resources

 Seattle-based nonprofit Sage Bionetworks has hosted its third annual Commons Congress in San Francisco to keep building momentum for a movement in which researchers share more of their experimental data and models in the open. Sage Bionetworks founder Stephen Friend, M.D., Ph.D., started the conference three years ago with Eric Schadt, Ph.D., to bring together innovators from academic science, Big Pharma, biotech, government agencies and patient advocacy groups. This year’s meeting was held April 20-21, 2012. The Association’s scientific director, Suzanne D. Vernon, Ph.D., attended in person, as did Scientific Advisory Board member Russell Bromley. CEO Kim McCleary listened in during sessions that were webcast live.

Agenda and presentation slides: http://sagecongress.org/WP/2012agenda/
Participant List: http://sagecongress.org/WP/2012participants/
Recording of webcast sessions:
     Web: http://bit.ly/IeH31y
     iTunes: Search for Sage Bionetworks Video Podcasts (2012 Commons Congress not yet available)

Recent news coverage of Sage Bionetworks, SageCon and the participatory-open science movement:

• “Citizen scientists” (Wall Street Journal, Dec. 3, 2011)
• “The Visionary: Stephen J. Friend” (Science, Feb. 10, 2012) (abstract only; article behind a paywall)
• “Seattle’s Sage Bionetworks seeks a drug-discovery revolution” (The Seattle Times, Feb. 11, 2012)
• “The drug industry’s blind alley” (Forbes, Mar. 28, 2012)
• “Sage Bionetworks moves from thinking stage to doing stage” (Xconomy, Apr. 18, 2012)
• “Why 23andMe’s Anne Wojcicki trusts the crowd over the system” (Wall Street Journal Health Blog, Apr. 18, 2012)
• “Is Elsevier heading for a train wreck?” (Bernstein Research, Apr. 20, 2012)
• “Harvard advisory council now promotes open access publishing, says journals are too expensive” (The Verge, Apr. 23, 2012)
• “Harvard now spending $3.75 million on academic journal bundles” (The Atlantic, Apr. 23, 2012)
• “Life after Elsevier: Making open access to scientific knowledge a reality” (The Guardian Notes & Theories Blog, Apr. 24, 2012)
• “Open science and access to medical research” (Scientific American Blogs, Apr. 24, 2012)

Two articles about models of research innovation being led by nonprofits feature organizations that have shaped our thinking about the Association’s Research Institute Without Walls:

• “All together now: Charities help Big Pharma” (The Economist, Apr. 21, 2012)
• “Mission Critical: How disease-specific foundations may save medical research” (The Atlantic, Apr. 21, 2012)

More conference resources:

• Twitter hashtag #SageCon and #OpenScience
• “Copyright activist” Larry Lessig’s keynote address “Ingredients for Innovation” (video)

Blog Coverage of the Congress:

• The Sage Congress: The synthesis of open source with genetics (Apr. 19, 2012 by Adam Oram on O’Reilly Radar)
• Favorite quotes and highlights from Sage Bionetworks Commons Congress speaker Larry Lessig (Apr. 21, 2011 by Brian Duggan on Conference Bites)
• Some brief responses to the Sage Bionetworks Commons Congress (Apr. 22, 2012 by Cameron Neyland on Science In The Open)
• Sage Commons Congress 2012 (Apr. 24, 2012 by mattoddchem on Intermolecular)

The CFIDS Association of America actively works toward open access through its affiliations with Sage Commons, Genetic Alliance, Alliance for Taxpayer Access and other cooperatives.

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