#SageCon Rocks #OpenScience Agenda

Sage Bionetworks is a “strategic nonprofit” started by visionary Dr. Stephen Friend to provide new technical and legal infrastructure that leads to open science, deeper patient engagement and faster solutions to complex medical problems. For the third year, Sage has convened the Commons Congress, an invitation-only event that gathers the movers, shakers and disrupters working at the leading edge of medical research to find solutions, not just promote careers. This year, our own Suzanne Vernon, Ph.D., is there; she’s recognized as one of the leaders in citizen-powered research, as demonstrated by our Research Institute Without Walls. Russell Bromley, a member of our scientific advisory board, has another one of the hot tickets.

Dr. Stephen Friend opens the Congress

While the participant list for the in-person event is exclusive, the information shared at the meeting is not. Sage Bio is providing a live webcast of most Congress sessions.  The conference began at 8:20 a.m. (Pacific) on Friday, Apr. 20 and continues until 4:00 p.m. (Pacific) on Saturday, Apr. 21. Many of the presentations have been posted already and they will make the recordings available on their site and through iTunes within a few days of the end of the Congress. Friday’s sizzling keynote presentation by attorney/copyright activist Larry Lessig of Harvard University, “Ingredients for Innovation,” is a must-watch as soon as it’s available. (We’ll post a link.)

Another way to listen in is via Twitter. You can search tweets from the meeting using the conference hashtag: #SageCon. Suzanne is tweeting from her @CPR4CFS (citizen powered research for CFS) account and we’ve tweeted from our regular @PlzSolveCFS account while watching the webcast, also “retweeting” other attendees’ messages.

Here is just a small sampling of some of the great tweets being sent about disruptive topics discussed at Friday night’s “Unplugged” session, during which multiple speakers held the floor for six minutes each:

Greg Biggers @bigs: ‘The difference between a researcher and a patient is a diagnosis.’ – @drsusanlove #sagecon #unplugged

Dr. Susan Love commands at the "Unplugged" session

Kelly Edwards ‏ @engagedethics: @basbloem shovels his 280 peer reviewed articles away as garbage because they were not listening to patients. Here at #sagecon unplugged.

GA BioBank ‏ @GABioBank: @Lessig Those threatened by new innovative methods will deploy corruption to stop it. This is OUR problem! #sagecon

Dave Chase ‏ @chasedave: #sagecon @DrSusanLove Observations from patient are as important as observations as those from clinicians

Lance Stewart ‏ @LJStewartTweet: Stuff never been done before. That’s what makes science fun. Young scientist view. #openaccess #sagecon remember

Dave Chase ‏ @chasedave: #sagecon Tom Insel, NIH 225 diseases out of 6k+ have treatments. 25 new drugs ok’ed last yr. 15yrs (& $1B+) to dev new drug.Unmet med needs

Suzanne D. Vernon ‏ @CPR4CFS: Alliance for taxpayer research, research paid for by our tax dollars in the open. NIH on board. #openaccess #sagecon

Kelly Edwards ‏ @engagedethics: Aled Edwards – everything conspires to support science doing conservative work. #neednewactivism Unplugged at #sagecon

@coding_doc ‏: #sagecon Personalized medicine requires personal participation. Nothing will happen for you if you don’t help make it happen.

Suzanne D. Vernon ‏ @CPR4CFS: Bas Bloem “can’t start a fire without a spark”. Research 2.0 is citizen-powered research #unplugged #sagecon

Sharon F. Terry ‏ @sharonfterry: Data that comes into FDA – stacked would be as high as Empire State Building. Paper. That is paper. #sagecon

Suzanne D. Vernon ‏ @CPR4CFS: Mission Critical: How Disease-Specific Foundations May Save Medical Research – The Atlantic http://bit.ly/IFtf0E

CFIDS Assn. of Am. ‏ @PlzSolveCFS: Thx @sagebio for webcast & everyone tweeting #sagecon. Even from NC w/ worst broadband in the US (@lessig) it was almost like being there!

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