Sage Bionetworks is a “strategic nonprofit” started by visionary Dr. Stephen Friend to provide new technical and legal infrastructure that leads to open science, deeper patient engagement and faster solutions to complex medical problems. For the third year, Sage has convened the Commons Congress, an invitation-only event that gathers the movers, shakers and disrupters working at the leading edge of medical research to find solutions, not just promote careers. This year, our own Suzanne Vernon, Ph.D., is there; she’s recognized as one of the leaders in citizen-powered research, as demonstrated by our Research Institute Without Walls. Russell Bromley, a member of our scientific advisory board, has another one of the hot tickets.
While the participant list for the in-person event is exclusive, the information shared at the meeting is not. Sage Bio is providing a live webcast of most Congress sessions. The conference began at 8:20 a.m. (Pacific) on Friday, Apr. 20 and continues until 4:00 p.m. (Pacific) on Saturday, Apr. 21. Many of the presentations have been posted already and they will make the recordings available on their site and through iTunes within a few days of the end of the Congress. Friday’s sizzling keynote presentation by attorney/copyright activist Larry Lessig of Harvard University, “Ingredients for Innovation,” is a must-watch as soon as it’s available. (We’ll post a link.)
Another way to listen in is via Twitter. You can search tweets from the meeting using the conference hashtag: #SageCon. Suzanne is tweeting from her @CPR4CFS (citizen powered research for CFS) account and we’ve tweeted from our regular @PlzSolveCFS account while watching the webcast, also “retweeting” other attendees’ messages.
Here is just a small sampling of some of the great tweets being sent about disruptive topics discussed at Friday night’s “Unplugged” session, during which multiple speakers held the floor for six minutes each:
Dave Chase @chasedave: #sagecon Tom Insel, NIH 225 diseases out of 6k+ have treatments. 25 new drugs ok’ed last yr. 15yrs (& $1B+) to dev new drug.Unmet med needs
@coding_doc : #sagecon Personalized medicine requires personal participation. Nothing will happen for you if you don’t help make it happen.
Sharon F. Terry @sharonfterry: Data that comes into FDA – stacked would be as high as Empire State Building. Paper. That is paper. #sagecon
Suzanne D. Vernon @CPR4CFS: Mission Critical: How Disease-Specific Foundations May Save Medical Research – The Atlantic http://bit.ly/IFtf0E