Getting the Message Out

On Feb. 23, 2012, at 7 a.m., the Association issued a press release through PRNewswire to announce the research institute without walls and a major gift from Laura Hillenbrand. The release was sent to top-tier media and medical, health, science and research-related media outlets. Read the release here…

The Wall Street Journal’s Market Watch was the first to post the release and Amy Dockser Marcus covered the announcements in the WSJ’s Health Blog: “With help from author Laura Hillenbrand, drug repurposing comes to CFS.” The article begins:

“The CFIDS Association of America says that $2 million in funding — backed by individual gifts including a $250,000 donation from best-selling writer Laura Hillenbrand, who has chronic fatigue syndrome– is going to grants and projects designed to accelerate the development of treatments for CFS.”

More than 325 news agencies posted the release to their websites. Here are some of those outlets’ logos:

This story ran on more than 325 other sites, including:
            MarketWatch (2/23/12)
            Breitbart (2/23/12)
            Yahoo Finance (2/23/12)
            The Boston Globe (2/23/12)
            The Houston Chronicle (2/23/12)
            The Las Vegas Review-Journal (2/23/12)
            The Los Angeles Daily News (2/23/12)
            MedIndia (2/23/12)
            Newsday (2/23/12)
            New York Medical College In The News (2/23/12)
            Pharmaceutical Industry Today (2/23/12)
            Pharma Live (2/23/12)
            Provident Healthcare Partners (2/23/12)
            Reuters (2/23/12)
            The San Francisco Chronicle (2/23/12)
            StreetInsider.com (2/23/12)
            The Sacramento Bee (2/23/12)

New York Medical College issued a press release about its faculty member, Dr. Marvin Medow, and his study of interventions to arrest the cognitive impairment observed during orthostatic challenge (upright tilt testing).

The University of Toronto issued a press release about its faculty member, Dr. Patrick McGowan, and his epigenetics study to be conducted with samples from the SolveCFS BioBank and funding from the CFIDS Association of America, as part of the Association’s “research institute without walls.” These and other news agencies posted the release, “Research examines environmental triggers altering gene function in CFS patients”:

           EurekaAlert (2/24/12)
           First ScienceNews (2/24/12)
           Medical Xpress (2/24/12)
           News Medical (2/24/12)

The Philanthropy Journal included news of Laura Hillenbrand’s $250,000 donation to The Catalyst Fund in its “This Week in North Carolina Giving & Nonnprofits” (2/17/12)

On Feb. 28, 2012, the University of Toronto posted a profile of Dr. Patrick McGowan and his CFS research grant from the Association.

On Thursday, March 1, National Public Radio listeners in the Charlotte area and around the world had the opportunity to hear CEO Kim McCleary and scientific director Dr. Suzanne Vernon describe CFS and the research effort that has spanned decades, as well as the Association’s research institute without walls. The show is now archived on the WFAE site for on-demand listening: http://www.wfae.org/wfae/18_93_0.cfm. 

Biovista issued a press release about its award from the Association on Mar. 6. The release was issued in English, French and German. It has been picked up by the following media outlets:

Bradenton Herald
Canadian News Wire
Sacramento Bee
The Telegraph (Calcutta, India)
BioWorld (a subscription-only publication for the pharma industry)
Bionity (a specialty website serving the biotech industry)

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