Copied from the Federal Register: October 5, 2011 (Volume 76, Number 193)
DEPARTMENT OF HEALTH AND HUMAN SERVICES Meeting of the Chronic Fatigue Syndrome Advisory Committee
AGENCY: Department of Health and Human Services, Office of the Secretary, Office of the Assistant Secretary for Health, Office on Women’s Health.
SUMMARY: As stipulated by the Federal Advisory Committee Act, the U.S. Department of Health and Human Services is hereby giving notice that the Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold a meeting. The meeting will be open to the public.
DATES: The meeting will be held on Tuesday, November 8, 2011 and Wednesday, November 9, 2011. The meeting will be held from 9 a.m. to 5 p.m. on November 8, 2011, and 9 a.m. to 4:30 p.m. on November 9, 2011.
ADDRESSES: Holiday Inn Capitol; Columbia Room; 550 C Street, SW., Washington, DC 20024; Hotel (202-479-4000).
FOR FURTHER INFORMATION CONTACT: Nancy C. Lee, MD; Designated Federal Officer, Chronic Fatigue Syndrome Advisory Committee, Department of Health and Human Services; 200 Independence Avenue, SW., Hubert Humphrey Building, Room 712E; Washington, DC 20201. Please direct all inquiries to email@example.com.
SUPPLEMENTARY INFORMATION: CFSAC was established on September 5, 2002. The Committee shall advise and make recommendations to the Secretary, through the Assistant Secretary for Health, on a broad range of topics including
- The current state of knowledge and research and the relevant gaps in knowledge and research about the epidemiology, etiologies, biomarkers and risk factors relating to CFS, and identifying potential opportunities in these areas;
- impact and implications of current and proposed diagnosis and treatment methods for CFS;
- development and implementation of programs to inform the public, health care professionals, and the biomedical academic and research communities about CFS advances; and
- partnering to improve the quality of life of CFS patients.
The agenda for this meeting is being developed. The agenda will be posted on the CFSAC Web site, http://www.hhs.gov/advcomcfs, when it is finalized. The meeting will be recorded and archived for on-demand viewing through the CFSAC Web site. It will be available by audio on both days and the call-in numbers will be posted on the CFSAC Web site.
Public attendance at the meeting is open. Those attending the meeting will need to sign-in prior to entering the meeting room. Individuals who plan to attend and need special assistance, such as sign language interpretation or other reasonable accommodations, should notify the designated contact person at firstname.lastname@example.org in advance.
Members of the public will have the opportunity to provide oral testimony on both days of the meeting; pre-registration for oral testimony is required. Individuals who wish to address the Committee during the public comment session must pre-register by Wednesday, October 26, 2011, via e-mail to email@example.com. Time slots for public comment will be available on a first-come, first-served basis and will be limited to five minutes per speaker; no exceptions will be made. Priority will be given to individuals who have not presented public comment at previous CFSAC meetings. Individuals registering for public comment should submit a copy of their oral testimony in advance to firstname.lastname@example.org, prior to the close of business on Wednesday, October 26, 2011. If you wish to remain anonymous, please notify the CFSAC support team staff upon submission of your materials to email@example.com.
If you do not submit your written testimony by the close of business Wednesday, October 26, 2011, you may bring a copy to the meeting and present it to a CFSAC support team staff member. Your testimony will be included in a notebook available for viewing by the public on a table at the back of the meeting room.
Individuals who do not provide public comment at the meeting, but who wish to have printed material distributed to CFSAC members for review should submit, at a minimum, one copy of the material to the Designated Federal Officer at firstname.lastname@example.org prior to close of business on Wednesday, October 26, 2011. Submitted documents should be limited to five typewritten pages. If you wish to remain anonymous, please notify the CFSAC support team staff upon submitting your materials to email@example.com.
All testimony and printed material submitted for the meeting are part of the official meeting record and will be uploaded to the CFSAC Web site; this material will be made available for public inspection. Testimony and materials submitted should not include any sensitive personal information, such as a person’s social security number; date of birth; driver’s license number, State identification number or foreign country equivalent; passport number; financial account number; or credit or debit card number. Sensitive health information, such as medical records or other personal identifiable health information, or any non-public corporate or trade association information, such as trade secrets or other proprietary information also should be excluded from any materials submitted.
Dated: September 30, 2011.
Nancy C. Lee, Designated Federal Officer, Chronic Fatigue Syndrome Advisory Committee
POSTED OCTOBER 18, 2011 (http://www.hhs.gov/advcomcfs/notices/n101811.html)
CFSAC November 2011 Meeting Changes
We have heard concerns about changes we have made in the venue and the format of the November 2011 Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting. Below we provide additional details about the upcoming meeting and our reasons for the changes.
We are working diligently to address major shifts in budgetary and staffing restrictions and remain committed to protecting the personal safety and well-being of the public attending the meeting. To this end, the November CFSAC meeting will be held in the Columbia Room at the Holiday Inn, located at 550 C. St. SW, Washington, D.C. 20024. This change was made because Room 800 of the HHS Humphrey Building, where previous CFSAC meetings have been held, cannot accommodate more than 50 persons, and HHS staff are required to escort all persons attending the meeting due to the Humphrey Building’s security measures. The Columbia Room at the Holiday Inn holds a maximum of 300 people and provides an opportunity for the public attendees to move freely about the hotel, rest in their rooms and use open hotel areas including the hotel lobby and restaurant. HHS will continue to provide a quiet area in the rear of the Columbia Room to accommodate attendees who need a place to rest. As at past CFSAC meetings, HHS will not provide any medical services.
There will be a live audio link to the two day meeting, which will allow listeners to hear the entire meeting in real time. Due to budgetary constraints, we are unable to provide a live video cast of the meeting. We will provide a video recording of the meeting on the CFSAC webpage, http://www.hhs.gov/advcomcfs, which will be posted within one week of the meeting. This recording will be compliant with Section 508 of the Rehabilitation Act and will include captions.
Time slots for public testimony will be available on a first-come, first-served basis and limited to five minutes per speaker. Priority will be given to individuals who have not given public testimony in previous meetings. Three hours have been allotted for public testimony. As before, we will accommodate persons who want to provide their testimony by telephone.
Thank you for your continued commitment to, and participation in, the important work of the CFSAC.
CFSAC Support Team
POSTED NOVEMBER 3, 2011
Meeting agenda: http://1.usa.gov/w3hTAI