The CFIDS Association is pleased to announce that it has been approved to join patientINFORM, a collaboration of medical publishers, health organizations, medical societies and health information professionals. Through the unique patientINFORM partnership, participating publishers allow qualified nonprofit health organizations to provide access to the full text of journal articles without a subscription.
The patientINFORM logo is like a seal of approval given to top websites that seek to link consumers with the most current, reliable information available about a particular condition. The CFIDS Association joins top-rated nonprofits including the American Heart Association, the American Diabetes Association and the Lupus Foundation, plus publishers like Nature Publishing Group, AAAS (Science), Elsevier and Wiley-Blackwell. Learn more about patientINFORM at http://www.patientinform.org/about/.
We are in the process of updating our Research1st site to add full-text links to research study summaries and analyses of articles published in participating journals. You’ll see the patientINFORM logo near links to articles made available through this unique partnership.
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This is fantastic and sorely, sorely needed. Well done, CFIDS Assoc.
PS- How does this work? I’m guessing that CFIDS Assoc. will only highlight high quality research on it’s website, but patients also need access to the junk studies that come out in order to write letters to the editors, etc. Can patients get access to studies which are not specifically highlighted by the CAA on it’s blog?
Thanks.
We will be able to link to the full-text of articles that are highlighted here on Research1st, that appear in journals from publishers that participate in patientINFORM (which is most of them!). At this time, there isn’t a way to provide readers with other articles of interest that may not be featured on Research1st. You’re right, John, that we’ll continue to focus on high-quality research.
Fantastic news! So many times many of us advocates need access to the full research papers and send messages around to try to find someone with access. This will be great. Thank you for seeing this need and finding a way to fill it.
Yes! Thank you so much for this news. Since at this stage, most of us have to bring papers to the attention of our medical folks (the other way around just doesn’t happen), this is welcome news.
Good news!
That’s really fantastic news.
Longer-term, I think any research undertaken with public (or patient) funds should be required to be open access.